The Waiting Game

I am waiting to heal.  Only the passage of time will tell whether or not my stupid heart will repair itself.  In the meantime, I wait and try not to be upset about the possibilities.  It’s hard, I will not lie.

So, what do I do while I wait?  I think about what was because what might be is too scary. 

I think about my parents because they’ve been through this but they aren’t around to talk about it.  Isn’t that the ultimate irony?  I think about the things I now understand about my parents that I couldn’t possibly have understood at the time.  And I forgive.

I AM trying to relax…

This weekend we came to our cabin in Wimberley. It is my Walden. My place of solitude. No tv, no cable, no internet. Just quiet and beauty. That is until the troop of middle aged men hiked through our property from the B and B up the hill.  I tried not to hoot and holler but I did very calmly offer to call the police if they didn’t immediately high tail it back up the hill. In Texas we don’t take trespassing lightly, and certainly not in my walden pond. I spent the rest of the afternoon in bed.  The fence guy should be here any minute. 

Broken Heart Syndrome

Tako Tsubo is also called Broken Heart Syndrome.  That sounds bogus, doesn’t it.  Really?  I just got back from tutoring my girl Kiera.  On the outside wall of the school as you walk in is a no bully sign.  You know, the kind with a circle and a line drawn through it.

I grew up in a different era when kids weren’t coddled.  My elementary school bully was named Dick Hardin.  He was a chubby kid who would knock us off our bikes on our way home from school.  I, in turn, bullied poor little Renee who was skinny, had pale skin and a knee brace.  She was a cripple.  We didn’t use words like handicap back then.  It was all very Darwinian.

When I suffered my first broken heart, my mother told me to get over it.  That no one ever died of a broken heart.  She had forgotten about Romeo and Juliet.  Anyway, that’s what you did.  You got over it.  I had my heart broken a number of times and each time it healed, a little scar tissue formed and a wall went up around it.  Before you get all concerned about my upbringing, 10 years of therapy (and Jesus) has removed most of the scar tissue.

The irony, however, is that the person who broke my heart one too many times is this man.  He pushed me over the edge.

I had the blessing of exercising the purist type of love, unconditional.  My dad had never told me he loved me, never hugged me, never asked about my day or came to visit me when I was sick.  He did, however, do what his generation did.  He went to work every day, paid the bills, sent me to the best schools he could afford, or not afford, bought our horses, paid for riding lessons, all that.  He and my mom attended every swim meet, horse show and sporting event I ever participated in.  

After my mom died in 2007 I called my Dad about 3 times a week until he got a girlfriend and was not so lonely. Anyone who knows my father knows that there is no such thing as a short conversation.  Well, actually, it isn’t a conversation so much as a monologue.  Nevertheless, I got to know my father more in the past 5 years than ever before.

When his lung cancer metastasized to his brain in September, 2012, the final journey began.  It was the task I was born to do.  It was my life’s purpose. It was the greatest gift I could ever give and I in turn received back many fold. It was a blessing.   Between September and when he died in November we hugged many times; he told me he loved me every time I left the hospital.  I crawled into bed with him when I told him we were taking him home.  He asked me, “to die?”.  I said, yes, to die.  And so it is that my heart is broken and I have this dreadful thing called Tako Tsubo.


When Does the Healing Begin?

I have a condition called Tako Tsubo.  At least I think I do.  One thing for sure is that nothing is for sure.  For the past 12 years I have had a pacemaker.  It all started at Aaron Brothers.  I was looking for picture frames to make a gallery in my upstairs hallway.  The next thing I knew, I was sitting on a display shelf, shaking off a near fainting episode.  This was the first of hundreds of such events.  I went from being a normal, healthy 44 year old, to being the kind of person who spends an inordinate amount of time at doctors’ offices and hospitals. I have had too many procedures to count, 3 pacemakers, one defibrillator.  Still, my heart rebelled.


Fast forward to last month.  I’ll skip the details for now, but my heart problems kicked into overdrive.  I had reached a truce with my unruly heart, continuing to do the things that gave my life enjoyment and kept me sane.  Hiking, bike riding, lifting weights, playing golf.  During this twelve year period, my heart was defiant, but it usually did its job adequately enough.  That all came to a screeching halt.  Somehow, I had all the signs and symptoms of a person who had had a major heart attack, leaving me, a health obsessed 56 year old with HEART FAILURE.  Only I didn’t have a heart attack.

The working theory is that I have a condition called Tako Tsubo.  It is a weird disease with an even weirder name.  My left ventricular suffered massive damage, not from a heart attack but from 1000 tiny cuts. (metaphorically that is).  Tako Tsubo is caused by stress.  As it turns out, stress can kill you.

So, what next?  I am on heart “bed rest”.  No stress, no exercise.  Those two things are mutually exclusive for me. Oh yea, I forgot, there is also medicine.  Yukky medicine that I have refused to take during the past 12 years because it leaves me too fatigued to do those things I enjoy.  If I succeed in living stress free, not exercising and taking the meds, my left ventricle should repair itself.

For a dyed in the wool pessimist, this is a tough task.  I am a half glass empty kind of gal.  I hope for the best, but expect the worst.  etc, etc.  But, this disease requires optimism, hope, peace.  I want to hike in the Lake District, play golf with my friends, ride bikes with my husband, walk the hills of Carmel.  Heck, right now, I want to be able to walk down the stairs at church to take communion without dreading the walk back.  I want to be able to put on my boots without having a V Tach.  I want to be able to carry a laundry basket, take a shower, blow dry my hair without having to lie down and rest.

December 2, 2013  From the gym to the Emergency Room of Methodist Hospital