Who’s Got Your Back?

I’ve spent much of the morning filling out paper work from the transplant center.  There is a contract in which you promise not to smoke, drink, miss appointments or generally engage in any behavior not pre-ordained by the center.  Both before and after the transplant.  I must agree to random drug testing for nicotine, alcohol and other substances.  Failure to comply can mean getting dumped from the list.  Fortunately for me, I gave up all my vices years ago, so this part is a breeze.

The form that gave me the most pause was the 24 hour care plan.  My need for 24 hour care was driven home repeatedly during my evaluation. I mentioned years ago that Rick and I are sort of thin on kin.  His words, not mine.  My sisters-in-law reminded me that that is categorially untrue. They are right.  The real issue is my unrelenting independence.

For the first time in my life, I will need to ask for help.  I’ve had a couple people already offer to be part of my care-giving team without being asked. That warms my heart more than they can ever know.  Rick will be the biggest part of my team.  He always is.  But he can’t do it alone.  We plan on hiring private nursing care and we are incredibly fortunate to be able to do this.  I may have to solicit a few people for relief or transportation.  And, most importantly of all, I hope to continue at my current level of health and to NEVER need a transplant.

But all of this has got me thinking.  Are my relationships a mile wide and an inch deep? How many people would I ask to take a week out of their lives, possibly taking vacation, to tend to my every need?   I don’t think it’s just me.  It’s the world we live in.  We are a fiercely self-sufficient lot, the whole puritan work ethic and all.  It’s also a result of the stage of life we’re in.  At this age, we can afford to hire people to take us to the airport, pick us up, water our plants, and get our mail. Things that when you’re young and poor, you do for your friends and neighbors.

I could easily blame this scarcity of care givers on the fact that my parents are both gone and that Rick and I chose not to have children. There is no question that a bigger nuclear family provides care giving options that we just don’t have.  But I do have extended family and friends, lots of friends.  But no matter which way I slice this, I have chosen a somewhat solitary life and now I’m facing the consequences.  I have Rick, so I am fine.  But this is a huge problem in our world today.  There’s even a term for it, “elder orphan.’

When the discharge nurse came to my room after my longest hospital stay, I said, “I am so happy to see you.  You must be the most popular guy in the hospital.” He said, “not always.  Some people don’t want to go home.  They have no one to go home to.”  That just broke my heart.

So, where am I going with all this?  I’m not sure I know.  Here’s what I do know.  We have to be more real with our friends.  If we only present to them our best selves, then it’s not realistic to count on them in our darkest hours.

We should be generous with our time.  I have some examples of what friends have done for me; driving six hours just to have lunch with me. Another hired a babysitter so that she could sit with me in the hospital as I recovered from a procedure.  These are just two examples.  Other people have brought me food, given me rides.  Come to visit.  I appreciate all these gestures.  I’m not used to this level of kindness.  I am not used to needing help.

We also have to do unto others.  Guilty as charged.  I rarely prepare a meal or offer to help out.  I am not only self-sufficient, but self-centered.  I don’t want to be inconvenienced.  I need to work on this.

We need to surround ourselves with the right kind of people.  If there are people we consider friends who we wouldn’t call for a ride, or a meal, or to come keep us company, we need to reevaluate what it means to be a friend.  I call these other people acquaintances. There is not a thing wrong with acquaintances.   I have more acquaintances than friends.  Friendship requires time and energy to nurture and there’s just so many hours in the day.  There most certainly is a cap to the number of friendships you can maintain.

At the heart of it is love and authenticity.  Besides just filling out forms, I’ve had lots of time and opportunity to ponder the meaning of life.  At the transplant center, I am surrounded by people who would not be here if it were not for this miracle of modern medicine.  I look at all of them.  Every race, age, gender, walk of life.  Each one is fighting to stay alive and I have to ask myself why?  It can’t just be the fear of death.  It has to be something greater.  With the guidance of the psychiatrist and the social worker, I learned that no one can go through this process alone.  It requires a support system.

While support system sounds like a clinical term, it really is pretty simple.  Do we have people we love and who love us back?  Are they willing to give of themselves to be part of our lives and do we do the same when we are able?  Are my relationships with these people worth the pain and suffering that will come with the transplant process?  You have to have something to live for, when living may not be the easier choice.

Do not rush to sign up for your time slot.  There isn’t a sign up list and, God willing, never will be.  Doing all this paperwork has played with my head.  I”m not usually this philosophical. Bottom line, let’s all just pledge to be better friends.  Let’s have each other’s backs.

6 thoughts on “Who’s Got Your Back?

  1. You have gained wisdom through this difficult time. Thanks for sharing. I know I can be selfish with my time & I need to be aware of that & be a better person/friend. You can count on Burt and me being part of your support system!

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  2. I love your thoughts and your beautifully written way of sharing them in an honest, non-judgmental way. I am happy to know you better. You put us and yourself connecting always with our better selves. ❤️

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  3. Sweet Shana, this is beautifully written. Don’t you just love the wisdom life teaches us, especially through our hardships, if we pay attention? As to you being a good friend, you are not being fair to yourself. When I was emotionally and physically tired from yet another of Wyatt’s surgeries and facing much more caregiving, you gave me respite, fun, and care for my soul in Carmel. You have faithfully checked up on me and been totally authentic through tough years of caregiving for me. When Wyatt died, you inconvenienced yourself and travelled to come see me. I call that a good friend. Count me in your list of those who will joyfully give you a week of my life to help, if you ever need it.

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